Wednesday, May 29, 2013

Keep moving forward; 12 days and counting...

Yesterday, we went to see Graden's Pulmonologist to get "surgery clearance" and received good news: Graden is moving air (breathing!) better than he ever has.

This is especially good news because of his upcoming surgery. He needs to be as healthy as possible going in... he will need all of his strength for recovery.

Doc continued to chat with Graden, who adores him. My dad got to go with us, which made me smile. I could see the pride in my dad's eyes as he watched G interact with Doc (with little help from me). I tried telling Dad how strong Grado was, but it's so much better when you can see it for yourself. Everywhere I take him, he makes friends (Dad and Graden - ha!).

During their chat, Doc told Graden how happy he was with his progress. Our Bi-Pap machine has really helped G sleep better at night - not to mention how it lets Mom sleep a bit better, too. 

Doc said, at this point, we won't need to revisit our Pulmonologist until October (long after our recovery, we hope), and then he said, "...and yearly thereafter." Talk about music to my ears...

Of course, he did tell me our Neurosurgeon would be the doctor ordering follow-up tests (MRIs, Swallow Studies, etc.) after surgery, and he reminded us that this surgery wasn't a "cure all," which we never forget. Still, he seemed positive that Graden was reaching the point of "living successfully" with his Chiari, which we know changes over time, but it sure sounds great right now. So, the BiPap helps, along with inhalers and medications as needed... Chiari can still cause concerns, but it seems his lungs are strengthening each day. Amazing!

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Today, I took a trip down memory lane... 

As I did one last "walk through" at the old house, cleaned the floors, and backed out of the driveway for the last time, I realized how much has happened in that house. It was our first home as a family. We moved in Memorial Day weekend (ironic timing!) in 2006. A lot of memories in seven years... Sure, it drove me crazy with clutter some days as we worked to squeeze in, but most days, it was perfect, and it was ours. 

I suppose it's appropriate to move out right now, as we take the next turn on Graden's journey. But, I can't fight this feeling (oh, wow... I just typed that to the tune of REO Speedwagon... yikes!) like I'm missing something, leaving something important behind, or doing something wrong. 

I have to keep my head up, though, and remember why we made the move. It was not because of anyone or thing; it was for all of us, especially Graden. We need to be able to pay past doctor bills and save for future care. We don't know what we will need, but we have to be able to afford whatever it is... Deep down, I know we made the right choice. In fact, I can already see how much we have benefited from the move financially. 

Have you seen "Meet the Robinsons?" It's a Disney movie, and one of my favorites of theirs, too. It's about a little orphan; his name is Lewis (he reminds me of Graden, despite the glasses), and he tries to be an inventor and build a time machine. He really, really wants to meet his mom and figure out why she left him on a doorstep. While that sounds heartbreaking, he actually goes on a journey and learns through a time machine mishap that life is not about the past. In fact, his "future self" teaches him his famous motto, "Keep moving forward." 

Why am I telling you this? Because it's a cute movie and you should watch it, but also because I like this little guy. Often, I think of my own past, Graden's past... I wonder "should I have done this?" or "if I would have done this, would G be better or different?" But, then, I remember that those memories, the past, doesn't change anything now. It's too late. It's done. So, instead, I have to "keep moving forward." 

I know I can't worry about moving out of our first home; those memories are done -- that chapter is closed. We're moving forward.

I sound like a broken record, but we truly are going one day at a time, and we will certainly "keep moving forward."



Monday, May 13, 2013

One more month...

I've started this blog post three times over the last three days. Each time, I try to think of something clever to mask the stress I feel about the date. May 10th hit me like a monsoon. It rushed in, without warning, winds blowing my mind in every direction, clouding my brain, causing me to feel an instant tension... 

One more month until Graden's surgery. 

Luckily, I finished my semester last week. Maybe that's why I noticed May 10th's arrival? I'm done for the summer. I can focus 110% on Graden, and my only obligation for the next few months is my family. Truthfully, I can't think much past June 10th anyway... One day at a time. Literally.

We have appointments, follow-ups, check-ins, therapies sporadically scheduled over the next few weeks. I'm trying to get all my "ducks in a row" and be prepared for us to travel to Riley. Landen will be staying with family (a few nights at a few different homes - he's excited but disappointed he can't be with G). 

Today was my first official day off, and I hardly sat down. I am keeping busy, cleaning, organizing, getting caught up on emails, files, and anything that seems tedious that I can't find the time to do during the semester. I'm leaving my lesson-planning/course rearranging for when we are home after surgery. For now, I'm going to take a break... read a little, write a little, and have fun with the boys (all my favorite things). 

I really want the next four weeks (exactly!) to be amazing for Graden, you know... just in case. If you feel like a play date, please let me know. I'm sure we'll be going to the zoo, the park, the splash-pad, baseball games, and wherever else I can think of... After his surgery, he'll be on "limited activity" for three months, so now is his time to enjoy summer.

We met our new therapist last week; she was wonderful with Graden. We will get another appointment in before surgery, too. I'm looking forward to working with her. She seems positive she will be able to help Graden with his "attention and impulse." Graden took to her immediately and was well-behaved during the hour-long consultation. (Proud mommy.)

Besides noticing the date roll around, life has been busy (but normal!) since my last post. The end-of-the-semester always keeps me occupied, and Landen started baseball season! So, the last few weeks, we've been adjusting to the game schedule.

We do have good news, though: We sold our home! (Did I tell you that yet?) We should be closing the first week of June. (Keep your fingers crossed we can get this done before surgery!)

Also, we passed our goal for our CSF Solo Walk/Fundraising for a new CSF Chapter in Fort Wayne! Check out our Team Page. There's still time to donate (end of May) or join our team! The more the merrier. :)

Other than that... there's  not much to report. Thankfully. I'll check back in before we leave.
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Albert Einstein said, "Life is like riding a bicycle. To keep your balance, you must keep moving." He was a smart man, no? :)