Monday, March 24, 2014

"My brain is going crazy, Mom."

"My brain is going crazy, Mom."

Words you never want to hear from your child, especially your child with a special brain.

But, what do you do? Tell him it's nothing. Probably just a headache. I mean the weather has been crazy; I've had a sinus infection for two weeks.

I could ignore him or think he's just trying to make an excuse for his bad behavior at school last week. I could consider that it's a growth spurt because he's hungrier, sleepier, and more emotional than he has been in months.

So, I called the doctor Friday morning after hearing the words off and on over the last week or so. Of course, there's more I'm not saying here -- like how he got in trouble two days in a row at school. How he's been in ISS (also twice). How he's had visits from the principal and has even had the pleasure of being called into her office. That's right, my Kindergartener has been in ISS and has been seen by the principal. Neat.

Of course, that's on top of his behavior at home, which has left a lot to be desired. He's happy, he cries, he laughs, he yells -- all within 8 minutes. It's not normal.

"My brain just goes crazy sometimes, and I don't know why. Here and here (he points to places on his head), Mom. It's weird."

Well, okay, then. My response? "Well, your brain is special. Maybe it needs a break. Like a rest? Just take a rest for a minute."

What the hell else do you say? Why, yes, dear, you're acting crazy. Can you make it stop? Um, not quite. Not to my six-year-old son; you know, the one who has already been through more than many people deal with in a lifetime.

So, again, I called. They called me back. And, VIP-status, I suppose, but we got right in on Monday -- today.

We went. We're home now. It was a fast visit, and I'm not sure I'm 100% satisfied with the plan. For now, though, I will go with it, because... what else can I do?

The point:  He shouldn't notice much of a change, but we're going to work on weaning him off his medication. This could potentially open the doors for seizures to happen, but we have to see how his brain responds since he hasn't had a full seizure in years. Once again, we rely on the risks and benefits. They're always so close on the scale, but it's tipping more towards benefits... so, we try.

Let's just hope it helps him and his crazy, special brain...